I began this book in 2014, when I started writing Sick Woman Theory, my first attempt at thinking through the gendered politics of chronic illness and disability. Over the years, it's morphed into an essay collection that attempts to foreground the many stories that are possible to tell, that are abundant and enlivened and vivified, not
despite illness and disability, but
because of them. In this reaching for as many stories as possible, I've gone down the paths of transness, BDSM, kink, Susan Sontag, psychotic women, witchcraft, wrestling, the color yellow, ambition, death, and heavy metal moshpits. It will be published by
Hillman Grad Books on September 3, 2024. Fuck me, it’s a whole fuck lot.
“Being born ruined my health.”
—Clarice Lispector
“Yes, yes, of course, this is gonna hurt.”
—Nine Inch Nails
publications—
Apr 2022,
Why It’s Taking So Long, Topical Cream
Jan 2016 / Apr 2022,
Sick Woman Theory, Topical Cream (originally published in Mask Magazine)
Apr 2021,
Soft Blues,
Intertitles: An anthology of work situated at the intersection of writing and the visual arts
Mar 2021,
Soft Blues [excerpt], C Magazine
Sep 2020,
What Can Be Seen Farther than Any Color on Earth: On P. Staff, LUX
Mar 2020,
A Text for COVID-19, Get Well Soon
Oct 2019,
She, Etcetera, The White Review
Aug 2019,
Hedva’s Disability Access Rider
Jan 2018,
Letter to a Young Doctor, Triple Canopy
May 2016,
In Defense of De-Persons, GUTS Magazine
translations of “Sick Woman Theory”—
Albanian
Danish
Dutch
French
German
Italian
Korean
Russian
Slovak
Spanish
Turkish
translation of “Get Well Soon”—
German
interviews—
May 2021,
Care Syllabus Interview, for Mass MOCA & MCLA
Sep 29 2020,
Engaging a New Normal: LA Artists on Vulnerability and Resistance, in Artillery
Sep 11 2020,
Interview with Johanna Hedva: crip-ple-able works, in Zine Seminar (also
available in Korean)
Aug 10 2020,
Talking with Johanna Hedva About the Luxury of Our Needs, interview on
Autostraddle
Sep 27 2018,
interview by Jessa Crispin, on Public Intellectual podcast
Aug 9 2017,
interview in Monstering
Apr 2016,
interview in GRAPHITE Journal
live readings & workshops—
Mar 24 2023,
Khronos: An evening on sickness and care in relation to time (for the Dutch book launch), Stichting Perdu, Amsterdam
Jun 1 2022, University of Applied Arts Vienna
Apr 3 2022, Amherst College
May 13 2021,
Deviant Fates: Ends in Care Times / Care in End Times, with Constantina Zavitsanos, Mass MOCA & MCLA
Jul 8 2020,
Lived Experience Autocorrecting
to Loved Experience, with Amalle Dublon, Institute for Cultural Inquiry, Berlin
Jun 17 2020,
With For About Conference, Episode 4
May 8 2020,
What Disabled Artists Can Teach Us About Remote Access, Now and Post-Pandemic, zoom panel, Art in America
Nov 9 2018,
Keynote at Sick Theories, University of Toronto's Centre for Sexual Diversity Studies
Mar 10 2018,
This Earth, Our Hospital, with Sara Cluggish, Sector 2337, Chicago (co-hosted by FD13 and the Goethe Institute)
Mar 8 2018,
To Those Mad, Sick, Crip Selves, with Lara Mimosa Montes, company, Minneapolis (co-hosted by FD13, Triple Canopy, and the Goethe Institute)
Mar 4 2018,
Malus Daemon: Temple of ill-omen, Doomed to climb. A Writing Workshop on Storytelling, Fate, and Astrology, The Future, Minneapolis
Nov 12 2017,
“Coalitions of Care” at Take Care, HAU2, Berlin
Apr 21 2017,
The Body Under It Is In My Hands, Perdu, Amsterdam
Jun 5 2016,
Autohagiography Workshop, WCCW
May 7 2016,
FACETS Conference, NYU
Apr 16 2016, Pomona College Women’s Union
Apr 15 2016,
A new job to unwork at, LACE
Apr 3 2016,
at land’s edge: Dialogues, Los Angeles Municipal Art Gallery
Apr 2 2016,
Yes Femmes, HRLA
Mar 31 2016,
Sick/Tender/Haunted,
South of Sunset
Mar 26 2016,
SICK FEST, Oakland
Feb 23 2016, Writing the Body, Pitzer College
Feb 7 2016,
Interview on The Oracle Hour, KCHUNG
Nov 15 2015, “The Body as Politic in Art and Theory,”
SLSA 2015
Oct 7 2015,
My Body Is a Prison of Pain so I Want to Leave It Like a Mystic But I Also Love It & Want it to Matter Politically, sponsored by
WCCW, hosted at
HRLA
fellowships and residencies—
2021, curator-in-residence,
Care in End Times, Mass MOCA & MCLA
2018, residency at
FD13, Minneapolis
2015-2016, research fellow with
at land's edge, Fred Moten (mentor)
→
blog.